Kids with Rare Genetic Conditions (A Photo Book)

A project in New York, NY by karen haberberg
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Funding Successful

Life affirming photos of extraordinary children contending with rare genetic conditions & finding joy & beauty in daily life.
Backers: 201
Average Pledge Per Backer: $126

Funded: $25,367 of $25,000
Dates: Jun 24th -> Jul 24th (30 days)
Project By: karen haberberg
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$25,367

current pledge level
Last Updated: July 24 @ 08:30 -0400 GMT

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funding period ended

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Latest News

WE DID IT!!!! KICKSTARTER FUNDED!

July 22nd - via: kickstarter.com
Thank you all for your incredible support for this project. I will keep you posted on how the project is going but in short, WAHOOOOO!  (Read More)

62 Hours and Counting!!! 93% Funded

July 21st - via: kickstarter.com
WAHOO Almost there. Just need $1583 and we are fully funded. Please forward to anyone that may be interested in pledging or participating in the project. GO TEAM!!!!  (Read More)

This is it! 3 more days!

July 19th - via: kickstarter.com
We are 3 days away from the Kickstarter ending and almost reached our goal! If the goal isn't reached none of the funds are given. Help me get cross the finish line. Thank you to everyone who has helped thus far!  (Read More)

The Mighty - How My Brother's Early Death Inspired Me to Capture Families With Rare Conditions

July 18th - via: kickstarter.com
http://themighty.com/2016/07/finding-inspiration-after-losing-a-sibling-to-tay-sachs-disease/. The Mighty    (Read More)

Something very cool happened today!

July 18th - via: kickstarter.com
The email below is from someone who saw my Kickstarter on DailyMail.  She is 49 and realized that she has the same condition as a young man name Louis, who I had photographed for this project. I forwarded the email to Louis's mom. Hello!!! I saw an... (Read More)

Project Believe: ABC News TODAY! Photographer Aims to Raise Awareness for Rare Illnesses Through Photobook

July 15th - via: kickstarter.com
ABC News ABC published a beautiful article on the project. Click the Link to see it in its entirety.... (Read More)

Daily Mail Writes a Beautiful Article on Karen Haberberg's Photography Project

July 15th - via: kickstarter.com
Daily Mail Article http://www.dailymail.co.uk/femail/article-3690717/It-incredibly-lonely-place-Woman-brother-died-age-three-rare-genetic-disease-captures-tender-images-kids-struggling-chronic-illness.html  (Read More)

Cosmopolitan - This Photo Series of Kids Who Have Genetic Diseases Is So Powerful

July 13th - via: kickstarter.com
Great article about my work on this kickstarter project from Cosmopolitan! Cosmopolitan http://www.cosmopolitan.com/lifestyle/news/a61326/photo-series-kids-genetic-diseases/  (Read More)

NY 1 News & Kids with Rare Conditions

July 13th - via: kickstarter.com
NY 1 just aired a piece on Kids with Rare Conditions! They shot and interviewed me working with the Denmark family. Very exciting! Photography Book Raises Awareness of Rare Illnesses... (Read More)

How This How this Photographer Is Proving That Kids With Genetic Diseases Live Beautiful Lives

July 6th - via: kickstarter.com
Popsugar just wrote an incredible article supporting my photography work on children with Rare Genetic conditions! Check out the link to view the images in slideshow form.... (Read More)

Fighting H.A.R.D - Two Girls that are incredible!

July 5th - via: kickstarter.com
I recently photographed these two amazing girls who are fighting hard every day! Joanna Jonna 12 years old “Hi! I have gastroparesis and a feeding tube. My journey has been HARD, but my dream is make sure kids like me do not feel alone in their... (Read More)

I Should be Thanking You!

July 1st - via: kickstarter.com
I have a lot to be thankful for this week. First, many thanks to all of you who have posted my Kickstarter on social media and or have given a pledge. I am truly grateful for your time, generosity and support.  Also, I must thank the amazing... (Read More)

Kickstarter supported by NY Family Magazine

June 29th - via: kickstarter.com
Great News! New York Family Magazine supports the project. Check it out! http://www.newyorkfamily.com/help-fund-karen-haberberg-photographys-project-believe/  (Read More)

Meet Maddy!

June 27th - via: kickstarter.com
Very exciting news! Maddy who has not been able to walk without a walker or someone holding her hands has taken her first few steps. HUGE progress for this little cutie.  (Read More)

Kids with Rare Conditions (A Photo Book): Day 2 13% and Rising

June 25th - via: kickstarter.com
Hello and thank you to my backers!!!! I am so excited we are off to a good start. We still have 28 days left to reach our goal, but we could still use your help to spread the word. As I'm sure you all know by now, Kickstarter projects are all or... (Read More)

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